At the start of 2018 our family had NO idea what Cystic Fibrosis even was, or that my husband and I were both carries of this genetic disease.
In April 2018 we had our second child, Hollyn. Upon birth and leaving the hospital we had a healthy baby girl. We were clueless that anything was wrong with our Hollyn girl. She was roughlty Two weeks old when we received a call saying that some results from her newborn heel prick came back abnormal.
Since then we have been on the rollar coaster of all things Cystic Fibrosis related. We have blessed with the most caring supporting groups of doctors and care teams! With the help from our families and all her doctors we have got into our new normal routine of life that is best for Hollyn.
Hollyn is a CHAMP when it comes to her vest treatments, nebulizer treatments, endless enymes pills and medication. Her strength is AMAZING !
There are approximately 30,000 Americans living with cystic fibrosis who struggle every day just to breathe. I walk for them too. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to my Great Strides fundraising campaign today!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!