November 30, 2010. The day our lives changed. That's the day we received a phone call letting us know that our perfect 10 day old baby had a positive newborn screen for cystic fibrosis. From there, we've spent years in appointments, doing therapies and keeping Zion as healthy as possible, as long as possible. He started Orkambi a year and a half ago... HE'S GAINED 10 POUNDS IN 9 MONTHS. That's HUGE for him! His lung function is currently in the 120's. He's a ROCK STAR. But that's because of your donations to these life saving medications. 2019 is a pivotal year. Great things are coming. We need your help to continue funding research that will allow Zion to live a long and healthy life!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal! A $5 donation would be amazing!