Rylee is amazing!
She's the youngest of our crazy bunch. We also have three other little humans along with our dog Roland, which Rylee calls, "RoRo".
Rylee is miss independent. She does everything her way. If you need anything, she’s always the first one to get it or step in. She knows how to do the laundry, wash the dishes, get dressed, and so much more. If her brothers and sister are doing it, she’s right there with them too.
She’s had a great year. She’s continued in the clinical trial at Riley hospital in Indianapolis. Marty and her go visit the team up there every 12 weeks. She sees her CF team here in Louisville every 3-4 months. The love and care she gets while visiting her teams is so appreciated.
The CF community is family to us and we appreciate every single person who has been part of the CF journey. The Cystic Fibrosis Foundation is hopeful and it’s because of the amazing people working for a cure. We’re in this together! We appreciate all the emotional and financial support you’ve given to our team over the years. Each day we’re one step closer to a cure and it’s because of you!