In 2013 I was so devastated after finding out Alex had CF that I just couldn't talk about it. This is a note that I would place in people's hands after small talk.
I'm sorry, but I just couldn't tell you what is really going on.
Actually, my grandbaby is not fine, all is not good...........
Alexandra has CF – Cystic Fibrosis, a life-threatening disorder
that causes severe damage to the lungs and digestive system.
Only 50% of people diagnosed with CF reach age 37.
It's difficult to talk about right now, but I would ask for your
support of the CF foundation (cff.org). Research is finding new
treatments for CF patients. Just 30 years ago, the life expectancy
for CF children was in the teens. Progress is being made and
someday soon a treatment will be discovered which will help
Alexandra.. but only if we all pitch in and help cover the costs
of the research.
Prayers are needed most. But if you can, please give.
Fast forward to 2022 and it was recently announced that newborns with CF now have a life expectancey of 50yrs old. This great advancement is due to YOUR generosity and support of the CF community. Again I ask.... please give