Dennis & Julie Walsh

Our Grandson, Hayden Baillie, needs your help. Hayden was born with Cystic Fibrosis(CF) a life threatening genetic disease that damages the lungs, pancreas and other organs. Hayden was diagnosed in the first week of his life which permitted treatments to start immediately. Hayden now takes over 20 pills per day and does two compression and inhalation therapy treatments each day to stay healthy. Hayden is finishing his junior year at Georgia Tech University and is healthy despite having CF.

CF research has made major improvements in treatments for CF. This has resulted in increasing life expectancy from 6 years in the 1950s to the mid 50s today, BUT there is no cure for CF. CF used to be considered a childhood disease because few patients made it to adulthood. Now due to new treatments and medicines more than half of the patients are adults. Day-to-day life is better for CF patients; however, anxiety  that results from having a life threatening disease can affect mental health and cause depression. Respiratory and other potential health issues are a constant threat to life and a big burden to carry.

Cytsic Fibrosis is an orphan disease with only 40,000 patients which makes it difficult to interest major pharmaceutical companies in investing the large sums of money research requires to develop new treatments. CF research funding is necessary to make this happen. This is where you can help. YOU can help to find a cure for CF with a donation to Hayden’s Team at http://fightcf.cff.org/goto/HaydensTeamlou2024