It's that time of year again that I ask all my family and friends to donate to Cystic Fibrosis Great Strides Fundraiser, Like last year it had to be virtual because of Covid19 so most likely it will be virtual again in 2021!!
Covid has really made my world smaller,I'm mean CF patients are the OG's of Social Distancing since we can't be within 6ft of another CFer,so to keep social distance from pretty much everyone I know except my mom,dad and sister, I have not seen any of my Aunt's,Uncle's or cousins in Michaign in over a year!
So it's been kind of lonely only being able to FaceTime my friends..
This time last year 2020 I had started the newest CF "miracle drug" Trikafta but sadly it didn't work for me. It had a great effect on my horrible sinuses and my lung function was awesome BUT it made me very sad and depressed so my mom made the decision to take me off and put me back on Kalydeco.
My lung function is great,my sinuses have been behaving,no surgeries since 2019..
I'd like to say that I've had no hospitalization for my GI issues but I recently spent 3 days in Norton Children's Hospital for my Distal Intestinal Obstruction Syndrome and had to have a "clean out" which is NOT fun.
Cystic Fibrosis effects more than lungs, That is why the Cystic Fibrosis Foundation works so hard to fundraise to support research into new,better medications to make sure all CF patients have brighter futures.
So I am asking you and will ask several more times until May 2021 to DONATE to my team,help us reach or even go over our goal of $1,000.
Help me look forward to my brighter future,I want to be able to go to college,have a career,perhaps get married and have my own family one day. SO WON'T YOU PLEASE DONATE TODAY?
Every dollar counts...Thank you