This has been an incredibly trying two years for so many people around the world and especially in our country. We have all had to learn a new way of life to make safety a priority in our daily living. Many in the CF community have been dealing with these issues their whole lives, such as wearing masks or constantly washing hands and sanitizing surfaces. However, there is no vaccine for CF and that is why we will continue to advocate through events like Great Strides to one day find the cure so many like our Laynee need.
This year Great Strides should be back in person for those that can attend but there are still virtual options available for those who are unable to be there withbus in person. The walk is scheduled for May 21st, 2022, and this year it will be at Keeneland race course! Below is some of the general information about CF and the walk but I wanted to give you an update on our girl and our CF year.
Last year the CF Foundation tackled March on Hill virtually. This was a great March on the Hill and we received encouraging responses to ensure access to adequate and affordable care. Anyone can be an advocate on the state or national level. If anyone would like to know more about the March on the Hill or the Teen Advocacy Day in the summer just contact me and we will get you on your way.
Laynee is in her senior year of high school! As far as her health, this has been a pretty good year except for a major surgery for her CF issues. We are very lucky to have a great care center at UofL Hospital with extremely gifted doctors. Our Laynee never really complains but we can tell it takes a toll on her. This is a scary time for all of us as Laynee will be transitioning to college freshman this fall. Laynee will be starting her path on a career to nursing.
Our girl is a trooper and never complains about all this medical treatment but I can tell you it is no fun for anyone. And our Laynee is a lot healthier than many kids with CF so we consider ourselves lucky in that respect. Some of the parents I met at March on the Hill in Washington, DC have CF kids with medical bills in excess of $30,000.00 per month. All money raised by Great Strides goes directly to research for medications that may eliminate the need for patients to take multiple medicines each day and instead just take one.
Please join us in person or virtually on May 21st and walk with Laynee and her family/friends and other CF families to help make CF stand for Cure Found!!There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.