Hello!! Thanks again for taking the time to consider Great Strides as a charitable donation. The support our team receives from each of you, year after year is amazing! Thank you in advance for continuing the fight to Cure CF.
This has been an incredibly trying year for so many people around the world and especially in our country. We have all had to learn a new way of life to make safety a priority in our daily living. Many in the CF community have been dealing with these issues their whole lives, such as wearing masks or constantly washing hands and sanitizing surfaces. However, there is no vaccine for CF and that is why we will continue to advocate through events like Great Strides to one day find the cure so many like our Laynee need.
This year Great Strides is all virtual. The walk is scheduled for May 15th, 2021. Last year everyone had to pivot and adapt to the virtual fundraising world; it was new and scary but we survived and thrived. The fact that it is virtual means everyone can participate from wherever you are instead of driving in to Lexington. We will be attending online and will share information so we can raise money for our Laynee and all the other CF patients who are still fighting for a Cure Found. Below is some of the general information about CF and the walk but I wanted to give you an update on our girl and our CF year.
Last year the CF Foundation tackled March on the Hill and Leanna and I were privileged to attend and advocate for CF patients. This was a great March on the Hill and we received encouraging responses to ensure access to adequate and affordable care. Anyone can be an advocate on the state or national level. If anyone would like to know more about the March on the Hill or the Teen Advocacy Day in the summer just contact me and we will get you on your way.
Laynee has had a pretty good year except for a couple of hospitalizations for her CF issues. We are very lucky to have a great care center at UofL Hospital with extremely gifted doctors. Our Laynee never really complains but we can tell it takes a toll on her. She is healthy enough to continue her soccer and will be a senior in high school this Fall. Laynee was able to attend her first ever Teen Advocacy Day this year virtually. In past years, CF patients have been unable to attend due to the risk of spreading infection between patients, but thanks to the CF Foundation they were able to make Teen Advocacy Day all inclusive and Laynee got to virtually meet hundreds of teens across the U.S. who are fighting just like her.
Our girl is a trooper and never complains about all this medical treatment but I can tell you it is no fun for anyone. And our Laynee is a lot healthier than many kids with CF so we consider ourselves lucky in that respect. Some of the parents I met at March on the Hill in Washington, DC have CF kids with medical bills in excess of $30,000.00 per month. All money raised by Great Strides goes directly to research for medications that may eliminate the need for patients to take multiple medicines each day and instead just take one.
Please join us virtually on May 15th and walk with Laynee and her family/friends and other CF families to help make CF stand for Cure Found!!There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.