Super Bear

Our Great Strides Story

It’s Bear’s first year with an all encompassing diagnosis. It’s SUCH a relief to have that diagnosis. The physicians have been able to draw back to the diagnosis to explain so many of Bear’s symptoms and issues. The rare zebra puzzle pieces all now fit together. Bear’s now well into his roadmap to the best health he can have.

And…it’s not lost on us as parents that this diagnosis also means there is no cure yet for cystic fibrosis. We are fortunate enough to have so much hope from modulators, but only one of Bear’s mutations is effected by the new medications he’s on. We don’t want to just sit back and take all the exciting advancements without giving back.

Which is why this year our family is signing up to walk and fundraising for the Great Strides Cystic Fibrosis Walk Louisville on June 1st. We’d love Bear to have his friend and family walk side by side with him.

To become a team member, click the “join this team” button. Once you register, it’s easy to donate and start fundraising.


Grab a shirt for the walk by May 12th to wear: https://www.bonfire.com/team-super-bear