JJ's Journey

We fight for J.J. aka John “solo” (Born May the 4th, 2020). JJ was born via c-section, and sent to the University of Iowa where he went into surgery the next day. They removed more than 1/3rd of his small intestine as there was a blockage that twisted up and necrotized his bowel. A few days later, he was diagnosed with Cystic Fibrosis. A few months in the Nicu and lots of medical attention and we were back home. We learned a LOT of information about a disease that we knew nothing about. JJ will turn 4 this may, and has grown from off the charts (not in a good way) to settling in around the 72nd percentile.  He has an extensive medical routine and we are constantly working with the medical professionals who implement and help develop different treatment plans for him. We know there is a long path behind J.J. with Cystic Fibrosis and still a long road ahead. We fundraise, we walk, we raise awareness so that JJ and so many others living with CF can receive life changing treatment options. Help us make CF stand for Cure Found!