On the outside, Jett is just an ordinary every day little boy who loves food, his dog, and learning new things. On the inside he is a bit different. Jett was born with a rare genetic mutation that causes the mucus in his lungs and digestive tract to be too thick. Because of his thick sticky mucus, Jett is more prone to lung infections, has trouble absorbing nutrients from food, and over time the disease will lead to lung damage and difficulty breathing. In the past couple of years the CF foudnaton had lead research that has resulted in medication advancements and treatments to prolong the life of **most** people living with CF. Jett has the specific mutations, along with approx 93% of other people living with CF that these advancements in medications benefit. There are even more rare mutations these medicaitons do not help. Every day we pray out sweet little boy and many others like him will see a cure in order to lead a full healthy life.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.