When "Froggy" was born in 2005, the life-expectancy for those diagnosed with CF was only 37 years old. Fast forward 17 years and it is now over 50! That increase is because of the brilliant efforts of the Cystic Fibrosis Foundation, the generosity of people like YOU and of course the daily diligence of those with CF who work hard to stay healthy!!! We are also thrilled that several years ago, Froggy started a new miracle medication called Trikafta! It treats the underlying cause of CF and prevents lung and other organ damage and GI issues. It has been a game-changer. But sadly, it does not work for everyone and not for every CF mutation. There is still a lot of work to be done.
That's where you come in! A donation to the CFF is the best way to bring us closer to a cure! Since Froggy's diagnosis, we have lived a roller coaster of huge ups and downs and having the hope and proven action of seeing those dollars transform into a healthier life, has been invaluable. Please consider supporting Froggy and all of those living with CF! Every cent matters. A $5 donation means just as much to us as a $500 one! Thank you!
-Elise Free (Froggy's mama)
More info on CF:
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.