The 2023 Des Moines Great Strides for Cystic Fibrosiswalkis May 20.Tula’s Capes and Tiarashas been striding since 2011 to help add tomorrows for Tula and approximately 30,000 other Americans who live with cystic fibrosis, a rare life-shortening genetic disease affecting both her lungs and digestive system. Tula’s mother Ryann is the team captain of North Carolina Tula's Capes and Tiaras and her Aunt Kim is a board member and active participant in the Rocky Mountain CFF chapter.
Tula is in 7th grade and will be 13 on June 28. Because Tula and her family are committed to the daily protocol of nebulizer and chest therapy, medications (to fight respiratory infections), and digestive enzymes before every meal and snack (to help her digest and absorb nutrition), her health has been very good. The really good news is that Tula has been able to maintain her weight since last spring without overnight tube feedings, has less stomach pain, and actually enjoys eating!
IowaTula’s Capes and Tiaras has raised nearly $50,000 over the last 12 years because of donors like YOU. We have really appreciated your past financial and/or prayerful support and hope you are able to support us again in 2023. YOUR dollars have enabled CF Foundation-supported research to help Tula and others add quality and length to their lives.
“Hope is the thing with feathers that perches in the soul and sings the tune without words and never stops at all.” (Emily Dickinson)
We look forward to a day when CFF stands for Cure Finally Found.
Please click “Donate to a team member” (above) to makean easy and secure 100-percent tax deductible financial gift.
If you prefer, you may send a check made out to Cystic Fibrosis Foundation to Lucy Carey at 2634 Camden Drive, Ames, Iowa 50010-3950.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.