We fight for J.J. aka John “solo” (Born May the 4th, 2020). JJ was born via c-section, and sent to the University of Iowa where he went into surgery the next day. They removed more than 1/3rd of his small intestine as there was a blockage that twisted up and necrotized his bowel. A few days later, he was diagnosed with Cystic Fibrosis. A few months in the Nicu and lots of medical attention and we were back home. We learned a LOT of information about a disease that we knew nothing about. JJ will turn 4 this May, and has grown from off the charts (not in a good way) and has settled in around the 72nd percentile for his weight. He has an extensive medical routine and we are constantly working with the medical professionals who implement and help develop different treatment plans for him. We know there is a long road behind J.J. with Cystic Fibrosis and still a long road ahead. We fundraise, we walk, we raise awareness so that JJ and so many others living with CF can receive life changing treatment options. Help us make CF stand for Cure Found!
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By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.