My Booger
Wesley was diagnosed with CF at 2 weeks old and has been a Rockstar ever since then! Although he is a rather healthy CFer, he has worked very hard to stay that way!!
At 5 years old, he has racked in almost 800 hours of physical therapy with his Vest alone! That doesn't even count the manual PT his does everyday too! He has also mastered swallowing all of his medications whole, which one of them is 5 at a time with meals! Sometimes he'll do 3plus2 or 4plus1 but generally will shoot all 5 in at a time (I struggle with 1)!!
His favorite thing to eat is peanut butter and he will put it on everything! He will even use it for his french fries instead of ketchup! I've seen him go as far as dipping a dumdum sucker in some peanut butter and actually enjoy it.
He is a huge GAMER! His favorites are Minecraft and Roblox! He has probably watched every single YouTube video about those games and learned to do it himself. It's always "Creepers" this or "Pet Simulator" that!! As much as it doesnt make sense to me it's a plus to be compliant during treatment times!
Together, for all CFers, we will keep kicking CFs butt! I love you Wesley!!!
The Great Strides Story
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
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By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.