Welcome to Team Amazing Gracie!!!! Thank you so much for joining our team, donating, or just visiting our page. Gracie is our AMAZING 5 year old little daughter living with Cystic Fibrosis. Diagnosed at just 10 days old with a life shortening disease changed our lives forever. We immediately started researching on how to find a cure to this thing!! An AMAZING thing happened-these scientists are so close to just that!! There has not been a year since 2014 they have not advanced medicines and pushed treatments through the FDA to keep fighting for a cure!! Big things are happening right now!! Now is the time to support this cause!! You will be the reason for the cure to this disease!!
Gracie's daily routine right now involves
•30 minute vest treatment that breaks up mucus sitting in her lungs twice a day (an hour daily total vest treatment)
•14 daily pills to help digest food properly
•2 liquid vitamins for deficiencies
•2 packets of modular therapy prescription medication powder
This is every single day for a 5 year old living with cystic fibrosis. The insane thing?? It usually just adds on as they get older and the disease progresses!! See why I'm so passionate about finding a cure?? These people need their lives back!! We are so thankful all these things are available, as NONE of them were just 10 years ago, but a cure to the whole thing would even better!!
THERE IS A CURE SO CLOSE!!! If money is what is takes to get there we won't stop until CF stands for Cure Found for all those living with the disease!!! Let's do this!!! Join our team today and don't forget to share on your personal page for your family and friends to do the same!!
**pseudomonas is a common, yet difficult bacteria to treat bacteria that weakens the lungs of those with CF over time**
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We've come so far, but there's still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to my Great Strides fundraising campaign today!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!
Achievements:
Ryan Hanes
Event: Cedar Rapids
| Team: AMAZING GRACIE
Ryan's Fundraising Goal: $5,000.00
| Amount Raised: $550.00
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.