My Story!
Ayden was diagnosed with CF at 29 weeks pregnant. He had a ruptured bowel and was leaking fluid into his abdomen. Doctors watched him closely and he made his appearance on December 27, 2018. Ayden fight was only just beginning as he struggled with eating during his first few months. Doctors agreed that the best route was for them to place a feeding tube. As this is common with people with cf it was still a huge shock for Aydens mother whom also had 3 other boys at home. At only 4 months old Ayden got his feeding tube. With several hospital admissions to follow over the next 3 years, Ayden is pushing boundaries and making great progress! He is now a crazy energy filled 5 year old set to start kindergarten in the fall. He got the chance to start a miracle medicine called Trikafta in spring of 2023 and it has been a complete game changer! This medication wouldn’t be possible without people like those who orchestrate GREAT STRIDES! This foundation and all its donors are the reason we have made so many advances in the care and treatments in CF that Ayden has been able to come off 2 medications and move from 24 hour feedings to 6 hour over night feeds! He went from 16 addmissions in 2021 to 3 addmissions in 2022-2023!!
The only way to keep the research and advancements coming is to reach amazing people like our donors and continue to educate on how CF not affects Aydens life but Our ENTIRE family’s life as well!!
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress and we hope you choose to become apart of that!
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.