Tom and I and BJ recently attended the 2024 Cystic Fibrosis Foundation HOPE IN ACTION Volunteer Leadership Conference in Washington, DC. The 2 day event was filled with fun, energy, optimism, and our CF community’s relentlesss pursuit of a cure. Following the conference we enjoyed several wonderful days with Tula and her family at their home in Hillsborough, NC.
While Tula’s overall health is very good, she continues to struggle with digestive issues. The good news is that she has a healthy appetite and has been able to maintain her weight without overnight tube feedings.
Tula is having a positive 8th grade experience and will be 14 in June. She continues to enjoy singing and doing creative artwork; interior design and architecture are recent interests. She is looking forwaed to annual “Cousin Camp” this summer and high school this fall. Several furry family members, especially her dog Fiona, claim a lot of her attention. She also enjoys running and playing basketball and video games with her friends.
Many friends and family members have offered financial and/or prayerful support for the past 13 years. I will appreciate it again in 2024. Please click above (donate to Lucy) to make an easy and secure 100 percent deductible financial gift and hasten the day when CF signifies "Cure Found.”
If you prefer, you may send a check made out to Cystic Fibrosis Foundation to Lucy Carey at 2634 Camden Drive, Ames, Iowa 50010-3950.
With gratitude, Lucy and family
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.