Parker’s Platoon is back and getting geared up to virtually walk in our 7th Great Strides to raise money for Cystic Fibrosis, CF. As most of you know, our son Parker was diagnosed at birth with Cystic Fibrosis. Everyday our family wakes up hoping for a cure for this life shortening disease. The fact is there has been amazing progress in medicine allowing several with CF to live longer fuller lives, but that is only for some…not all. There are just over 30,000 people living with Cystic Fibrosis in the United States, more than 700 living in Indiana. We fight every day for a cure and we need your help to get it done!
Parker is now 7 1/2 and is doing great!. However life is very different now! We attend school from home, birthday parties and weddings are cancelled and no socializing with friends and family just to name a few things. COVID-19 has changed us all forever. What hasn’t changed is Cystic Fibrosis. Every day Parker still has to take 30 pills just to digest what he eats, complete 2 separate 30 minute breathing treatments with his therapy vest, take vitamins and take his daily cure, Kalydeco. Parker doesn’t have to do all of these things because he is sick, this is the life of a healthy person with CF. If someone with CF gets sick a lot of these medications and therapies triple and may include being confined to a hospital bed.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We need your help to cure all with CF!!
Join my family and all with Cystic Fibrosis on June 5th for our National Virtual Great Strides Walk. Wear your team shirts or CureCF shirts that you may have received at a walk you attended and send a picture to me with them on. I am helping add tomorrows to the lives of people living with cystic fibrosis, will you join me? Will you join us virtually or consider making a donation to my Great Strides fundraising campaign today? If so, you can click on the link below. Your gift is 100-percent tax deductible.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.