Sadie's journey with cystic fibrosis began at just 7 days old, when she was diagnosed through the newborn screen. From that moment, we joined a community that was not only beautiful but also remarkably supportive and courageous.
Our initial knowledge of cystic fibrosis was limited to what we had seen in the movie "Five Feet Apart." I remember asking the doctor, "Isn't this that lung disease?" The fear and uncertainty were overwhelming as we grappled with the reality of Sadie's diagnosis.
However, as we've continued to educate ourselves, we've discovered hope on the horizon of cystic fibrosis research. With each passing day, new treatments are approved, and the promise of a cure becomes increasingly real.
Today, Sadie is a vibrant, joyful little girl. She loves to sing and dance, and her mischievous antics keep us on our toes (quite literally, at times). While cystic fibrosis may be a part of her story, it does not define who she is.
Despite the progress made, there is still work to be done. More research is needed to turn the dream of a cure into a reality. Together, we can make a difference.
Join our team and help us take one step closer to a world where cystic fibrosis is a thing of the past.
Together, we can bring hope to countless families and ensure a brighter future for generations to come.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.