This team is for two brave, beautiful and spunky little girls. My daughter Finley Frankart and my friend Rachel Beazell's daughter Evalyn Beazell and we walk to help raise awareness for CF, so that one day CF will stand for Cure Found.
A little about Finley...
She was born September 2015 and diagnosed at 2 weeks old. She had her first hospitalization at 2 months old and stopped eating, then she received an NG feeding tube to help keep her thriving. Three months later she still would not eat and they diagnosed her with a feeding/oral aversion and at 5 months old had surgery to get a g-tube instead of the NG feeding tube. She is doing great with her g- tube and still thriving. She has definitely made alot of progress since this then. This little warrior has been through so much at just 7 years old. Too much to list and still, She is the happiest little girl despite this terrible disease and is always smiling and giggling and on the go. She loves sports, crafts and all things babies. She is our little warrior. The bravest kiddo we know. She has two older bothers Tripp 13 yrs old and Sawyer 10 years old.
Now a little about Evalyn...
She has had quite an interesting beginning to life as some of you know. She was brought into this world by her birth mother on April 9, 2014 along with her twin sister. She was fighter from day one despite her tiny size she was able to surpass the doctors expectations and go home sadly without her twin. When she was two months she was returned to the ICU because of aspiration and during this four month stay she had to fight harder than ever. She was on a ventilator and received her gtube. Just when they were about to give up hope she pulled through and she went home with two special angels in a foster home where she resided until she was 23 months old. During this time she received multiple therapies and spent majority of her time in the hospitals due to her CF.
On January 3, 2016 we met this special little girl who we now call our daughter. It was a long waited meet after several emails, interviews, home inspections and so much more but the day finally came. Throughout the next two months we made multiple 3 hour trips to visit, take classes, build our bond and just get to know this special girl.
On March 15, 2016 --- SHE CAME HOME!! On this day she moved in for good and our adventures were surreal. We spent the next three months at Riley with her due to her CF and some adjustments to the new germs. Her little body was so tiny and fragile. She was 23 months and 16 pounds of tiny. Around June 20, 2016 was our last hospital stay we have grown TREMENDOUSLY. The little girl they said may never walk, talk or eat is doing just that. We do six therapies a week with some amazing therapists with two different companies. The little girl we brought home has finally blossomed and has became the diva she has always been. She is so full of life, personality and spunk. We are going to be three soon and she is growing in ways no one imagined. The last year she has broke down so many barriers and we do not plan to stop here.
Without awareness, there is no funding.
Without funding, there is no research.
This is our 8th year doing The Great Strides Walk and I can't wait to get started on all the fundraising and see everyone come together for this great cause. I can't wait for the day a cure is found!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.