Amelia's mommy here, Tonya! Miss Amelia was born in October 2020. She has been a little rockstar with everything with her condition of cystic fibrosis, & let's not forget outside of it as well, because more than anything she is still a sweet, crazy little girl. Miss Amelia has mastered taking her pills whole with applesauce, she loves her food (for the most part), she runs around and is very curious of her surroundings, and she likes to challenge her brother with his own basketball. Amelia currently takes her enzymes with any food containing fat or protein. She does physio therapy twice a day, when she is feeling well and one to two more gets added if or whenever she becomes under the weather. She takes her vitamins with her breakfast. Amelia also sees her team at Riley every three months for check ups. We are beyond thankful for this team and they are always there with any and all questions and concerns!
This is just a little bit about our Millie and there are many more kids and adults fighting this same fight that we are as well. We hope you will join us in this fight against Cystic fibrosis and help us find a cure. A donation, sharing our story, or even simply taking the time to understand what this genetic disease is- will mean so much to us.
We appreciate you taking the time to read this and we hope you and your family have a healthy, happy, and beautiful 2023!
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
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