We are wishing all of you a Happy Lunar New Year, which is the year of the Rabbit and Gabe’s birth year.
2022 was an exciting and stressful year for us. It started with Gabe and I waiting nervously for our Visas to go to Australia, helping Lana get off to Italy for her study abroad, flying to Australia and settling in Newcastle for 5 months. We were worried about leaving the kids for so long, but Ella had a great first year of college, Lana loved her time in Italy, Clay got a job at the Univ. Chicago and Peter continues as social worker living in Indy. Lana also graduated and got a job at Macy’s NYC and now lives in Jersey City. We were all together for our week in Michigan, Thanksgiving and Christmas.
Clay is almost 26 and just getting off our insurance- incredibly stressful for someone with a chronic illness. His health continues to be so much better than we ever imagined. He still faithfully does his treatments daily. Someday, we hope research and improved medications will change the length of his 45 minute twice daily treatments.
We will once again be walking in the Great Strides Walk. There is no cure for cystic fibrosis (CF), so we continue to fundraise, feeling that our efforts and yours have made a tremendous effect on Clay and the other 30,000 people who live with CF in the U.S.
We once again are asking for donations for Team Clay for the Great Strides Walk, or that you create your own Team Clay in your local area. The Indy Walk will be May 7th.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.