Hi this is Shelby! I am a 26 year old with Cystic Fibrosis. Many that know me already know my journey but the ones that dont, here ya go. Growing up I was pretty much your typical child but seemed to always be a mystery. This mystery went on until I was 11 when my mother finally pushed the doctors to figure out what was wrong with me. Cystic Fibrosis became my diagnosis and my life. The begining shock quickly wore off after realizing I found what had be holding me back. Medications and treatments quickly became part of me but I soon found out that it would not be what definded me. I was told life events could be a challange, but I pushed myself and graduated high school and later graduated college early with a bachlors in Ag-business. I knew that CF was not going to be my whole life but just a part of me. Fast forward a couple of years and my miracle drug became available! Trikafta has been a life changer, it has allowed me to run with my sisters, nephew and nieces and not feel like I'm dying. I finally knew what a "Normal" life looked like. I was able to move states and marry the man of my dreams. Without Ben and our families, I dont know where I would be today. I love just being able to live life and do what I want to do. We continue to do regualr visits with my CF team and just hope for more advances in the CF community. CF is not something I would ever wish upon anyone, but it has defiantly shaped me into the woman I am today and I would never change that for the world.
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
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