This team page is for our daughters Finley Frankart & Evalyn Beazell. This is our 7th Great Stride!
A little about Finley...She was born September 3rd 2015 & diagnosed at 2 weeks old. She will be turning 7 this year! She had her first hospitalization at 2 months old & stopped eating, then she received an NG feeding tube to help keep her thriving. Three months later she still would not eat & they diagnosed her with a feeding/oral aversion & at 5 months old had surgery to get a g-tube instead of the NG feeding tube. She is doing great with her g- tube & still thriving. She has definitely made alot of progress since this time last year. She has also faced other digestion issues too and she was hospitalized for those as well at 5 1/2 months old & currently we believe we have them under control. She is the happiest little girl despite this terrible disease and is always smiling and giggling. She is also a lite sass. She has 2 older brother's Tripp and Sawyer. She loves them so much & they just adore her.
Now a little about Evalyn...
She has had quite an interesting beginning to life as some of you know. She was brought into this world by her birth mother on April 9, 2014 along with her twin sister. When she was two months she was returned to the ICU because of aspiration & during this four month stay she had to fight harder than ever. She was on a ventilator & received her gtube. She went home with two special angels in a foster home where she resided until she was 23 months old. On January 3, 2016 we met this special little girl who we now call our daughter. It was a long waited meet after several emails, interviews, home inspections and so much more but the day finally came. Throughout the next two months we made multiple trips to visit, take classes, build our bond & just get to know this special girl.On March 15, 2016 --- SHE CAME HOME!! On this day she moved in for good & our adventures were surreal. She was 23 months and 16 pounds of tiny. Around June 20, 2016 was our last hospital stay we have grown TREMENDOUSLY. The little girl they said may never walk, talk or eat is doing just that. The little girl we brought home has blossomed & has became the diva she has always been. She is so full of life, personality & spunk. We are going to be 8 soon &she is growing in ways no one imagined. She has broke down so many barriers & we do not plan to stop here.
These girls are fighters & will be fighting against CF their whole life. And with the the love and support of their family, friends & all of you we can help them through every obstacle they face and raise awareness about this disease.
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
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