Jensen's League is committed to supporting the search for a cure for cystic fibrosis, for Jensen and the 70,000 others worldwide who are fighting the same battle. We would love to have you team up with us to help add tomorrows to his life!
One way you can be a part of Jensen's League is by donating here on our team page. Donations made here go to the Cystic Fibrosis Foundation (CFF), whose mission is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care. Since Jensen's diagnosis at birth, we have been so very grateful for the work of the CFF and the support we've received from them.
Another way to partner with us is by participating in this year's Great Strides event, celebrating the great strides we've made towards a cure! This year's walk is downtown at Victory Field on 6/5. We can't wait!
Thank you for your love and support of us and of Jensen. The past couple of years have been difficult for us and for many others in so many ways, but we're thankful to be able to say that Jensen is doing well. He's not new to the mask game, and he loves "stay home" days. He's for sure tired of all things COVID (as we all are), but he's a real trouper. He was so brave and excited to be able to get his COVID vaccine. And his symptoms were mild when he finally came down with it.
Jensen's good health this year (and thus far in his life) is largely due to the spunk and strength God has given him, this team's support, his amazing clinic team, and the work of the CF Foundation. Treatments have come so far over the years, and we believe a cure is in sight! Let's keep striding UNTIL IT'S DONE!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.