Happy Spring, Hope everyone is doing well. Winter was very long and rough in Indiana. We had a big snowstorm in early February right before we left for Australia. We’ve been in Newcastle, NSW Australia since then, where Gabe has a Fulbright Fellowship. Lucky for us we escaped the cold, and we’ve enjoyed lovely weather even with all the rain.
Clay graduated from the Univ. of Chicago with his Master’s degree last May and is now gainfully employed at UChicago. He and Simone are thriving in Chicago. He continues to do his treatments and take all his medications, including Trikafta- the wonder drug developed by the CF Foundation thanks to all of our supporters. His lung functions are now perfect, which is an absolutely incredible thing to be able to write. He still does all of his normal treatments and takes all of the meds, but wow—what an incredible difference your continued support has made in the life of this one person with CF who we love very much!
There is no cure for CF, cystic fibrosis, so we continue to fundraise, feeling that our efforts and yours have made a tremendous effect on Clay and the other 30,000 people who live with CF in the U.S.
We once again are asking for donations for Team Clay for the Great Strides Walk or that you create your own Team Clay in your local area.
I will be home in June and Gabe will be back early July. We have missed our family and friends so much while we have been gone, but somehow everyone has done just fine without us. We look forward to reconnecting this summer.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.