
Sadie was born at exactly 3 p.m. on January 27, 2020. Ryan and I were so excited to have a baby and labor and delivery went great (even without the pain meds). She was healthy and passed all her newborn tests with flying colors. All of them except her newborn screen. We got the call two days after coming home.
"Your baby has genetic markers for cystic fibrosis," the doctor said. "Isn't that the lung disease?," I asked. That's all I knew about it at the time. A lung disease. One that is terminal.
We've spent a year learning and growing and healing from her diagnosis and have found there is so much hope. The community is amazing and full of kind and strong parents and families who also have loads and loads of hope themselves.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. I walk for my daughter.
Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.