My Great Strides Story
At 8 days old, my grandson Isaac was diagnosed with cystic Fibrosis. Now, nearly 4years later, he takes medications with every meal to help him digest food. He takes Trikafta twice daily as well. Not to mention regular breathing treatments (wearing his shake vests). Regular visits to the CF clinic for throat swabs, blood draws and more poking and prodding than a little boy should have. He is a happy, rambunctious little boy, who like so many others with CF, deserve to live a full and happy life. I stride for Isaac’s future and the future of all with CF.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.