
Year 17. How can that be? We are so thankful to everyone who has been on this journey with us. The changes would not have happened if not for the millions of dollars donated by fundraisers like this one. . We are very excited to be walking on May 7. Please help use reach our goal of raising $5000. EVERY DOLLAR HELPS. Levi has been on Trikafta for three years now and is doing great. This has been dubbed the "miracle drug", but the reality it is not a miracle for all with CF. Some have a rare mutation that it won't help, others have side effects that are too great. Levi has liver disease, and it's really hard on the live - so there may come a day he won't be able to take it anymore. The real miracle will be a total cure. The CF Foundation funds the research to controlling this disease and towards a cure. Without the CF Foundation, there probably wouldn't be any company willing to put up their own money to research because their isn't enough patients that will benefit from it. There are only 30,000 people with Cystic Fibrosis in the US. We will continue to raise money so the CF Foundation can continue their research. Please help us to ensure the research continues by making a donation.
Sincerely,
Todd, Beth, Levi, and Logan
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.