Hello Friends and Family!
It's 2023, which means we are on year 12 for Deaner and Great Strides. Every day and every dollar we are getting closer to a cure. Team Dean-O-Mite has raised $108,580 since 2012 for Great Strides - we could not have done this without the help and generosity of our friends and family! THANK YOU! Much has changed over the last almost 12 years and the majority of that is directly related to the four drugs which are currently available to treat the underlying CAUSE of CF in just over 90% of the CF population.
These advancements and changes are amazing and helping so many with CF. In March of 2023 Dean will have been taking Trikafta for one full year! This is something we thought we would not have happen for years! As great as this is and has been for Dean, we know we are not done yet. We are not at 100%. We will not stop until it's done and all those living with CF have a CURE. To make that happen, we will continue to fundraise, ask for support, attend events, and advocate with our legislators.
As Dean is getting older, he is starting to become more aware of what CF means for him. I asked Dean to share some thoughts with all of you:
1. Walking (and fundraising) matters so people with CF can find a cure and get healthier.
2. Because of CF, I have to work harder to stay healthier. But it also brings good things like learning new things about science and friends (our CF team).
Cystic Fibrosis does not stop Dean, and we are very thankful for that. Matt and I are beyond proud of how Dean handles CF and are hopeful that the routines we practice now will keep him healthy and be engrained in him when we hit those pesky teenage years (which are getting closer and closer)! Dean is definitely one of a kind. He loves to read and create, learning about history, playing board games, and being crazy with his sister, cousin, and his friends. He is great big brother and cares deeply for all those he loves.
We know everyone has their own cause - and we know you cannot donate to everything. We appreciate all the support and love we receive, we cannot begin to thank everyone enough. Please consider supporting and helping us find a cure for Deaner and the other 750+ Indiana CFers!
Matt, Rachael, Dean, and Renley Learn more about cystic fibrosis at www.cff.org