We are participating in this walk for our daughter Finley Frankart.She was born September 3rd 2015 and diagnosed at 2 weeks old. She had her first hospitalization at 2 months old and stopped eating and then received an NG feeding tube to help keep her thriving. Three months later she still would not eat and they diagnosed her with a feeding/oral aversion and at 5 months old had surgery to get a g-tube instead of the NG feeding tube. She is doing great with her new tube. It is a gift. Without it she wouldn't be where she is now. She is starting to snack now and except some foods and drinks water as well. She loves Mac n cheese and alfredo. She has definitely progressed alot since last year. We have faced a few other digestion issues too and she was hospitalized for those as well at 5 and half months old and currently we believe we have a handle on those now as well. She has made such amazing progress with her oral aversion and we are beyond proud of this little girl. She is such a warrior and an inspiration. Other than all that she is the happiest little girl ever! She is always smiling, giggling and on the go. She has two older bothers Tripp 7 yrs old and Sawyer almost 5 years old. She loves them so much and they just adore her.
This is our 2nd year doing The Great Strides Walk and I can't wait to get started on all the fundraising and see everyone come together for this great cause. I can't wait for the day a cure is found! Join Fierce Finley'sTeam.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.