Eddie & I had our 4th baby girl on April 20th of 2010. As if having a new born with 9 years between the last child was not challenging enough, we received some unfortunate news a couple weeks after she was born. Avery was diagnosed with Cystic Fibrosis (CF), which is a chronic genetic disease that affects her lungs & digestive system. There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. We have learned a lot about this disease since Avery’s birth.
Despite living with this disease on a daily basis with multiple treatments & medicines, Avery continues to be a fun loving, energetic & active little girl that loves going to school & singing songs.
My family & I are trying to help raise money for the Cystic Fibrosis Foundation. This organization is trying to find a cure for this disease. Even though CF is the most prevalent genetic disease in the United States, it does not receive government funding like some other diseases; therefore, it is even more important to help raise money to find a cure for this deadly disease. With your help, we can find a cure! Please donate today!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.