My Great Strides Story
Our sweet Sofia! This spunky little girl with bright blue eyes and a mischievous grin has stolen our hearts. She has a vibrant personality and doesn’t know a stranger. It’s not unusual for Sofia to break into a little jig and sing her favorite song (even one she may make up as she goes).
After spending many months at Riley Children’s Hospital, Sofia was diagnosed with Cystic Fibrosis. Her care requires a lot of time and energy on everyone’s part. But she’s well worth every minute and every bit of energy it takes!
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs.
Thankfully,
working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.