While I run, I hope
Meet Brynn! Brynn is my niece, and she was diagnosed at 3 weeks old with Cystic Fibrosis (CF).
I'm on a mission!
Beginning July 1st 2023 and ending on April 30th 2024, I plan to run 65 miles a month for 10 months. Why this number?? The number 65 holds a special meaning in the CF world. Ask any child to say Cystic Fibrosis and their response will be Sixty Five Roses! Go on, give it a try!
If you would like to pledge per mile or donate a one time payment, any amount is appreciated! You can track my runs here starting July 1st.
CF is a rare, genetic disease that affects about 100,000 people worldwide (40,000 people in the US). In people with CF, a defective protein is made resulting in thick & sticky mucus in the body.
In the lungs this thick mucus clogs the airways and traps germs & bacteria that lead to persistent lung infections & limit the ability to breathe over time. Brynn currently undergoes daily high frequency chest wall oscillations and 3 breathing treatments a day to help “break up” the mucus so she can clear it easier from her lungs.
In the pancreas, the thick mucus prevents the release of digestive enzymes that help the body absorb food/nutrients. Brynn must take digestive enzymes every time before she eats to absorb nutrients and grow.
CF affects many other parts of the body; any part of the body where there are “tubes” & this thick mucus builds up causing blockages & damage over time.
I’m raising money for the CF Foundation to offer hope to those living with CF. Through the support of donations, the CF Foundation has helped advance the development of more than a dozen treatments and has added decades of life to those living with CF, but too many lives are still cut far too short and we will not stop until CF stands for Cure Found. Your pledge will help fund research and more medical advancements so we can continue to add more tomorrows for all people living with CF.
Thank you for all of your support & taking the time to learn and bring awareness to this disease!
While I run, I hope.
Our Lady of Champion, Pray for us
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.