This is why we STRIDE.
Meet Brynn! Brynn was diagnosed at 3 weeks old with Cystic Fibrosis (CF).
CF is a rare, genetic disease that affects about 100,000 people worldwide (40,000 people in the US). In people with CF, a defective protein is made resulting in thick & sticky mucus in the body.
In the lungs this thick mucus clogs the airways and traps germs & bacteria that lead to persistent lung infections & limit the ability to breathe over time. Brynn currently does chest physiotherapy daily (or what we call “pitty pats”) where we tap on various spots on her back and chest to help “break up” the mucus so she can clear it easier from her lungs.
In the pancreas, the thick mucus prevents the release of digestive enzymes that help the body absorb food/nutrients. Brynn must take digestive enzymes every time before she eats to absorb nutrients and grow.
CF affects many other parts of the body; any part of the body where there are “tubes” & this thick mucus builds up causing blockages & damage over time.
We are raising money for the Great Strides Walk, which is the CF Foundation’s largest fundraising event, to offer hope to those living with CF. Through the support of donations, the CF Foundation has helped advance the development of more than a dozen treatments and has added decades of life to those living with CF, but too many lives are still cut far too short and we will not stop until CF stands for Cure Found. Your donation will help fund research and more medical advancements so we can continue to add more tomorrows for all people living with CF.
If you would like to donate, any amount is appreciated!
Thank you for all of your support & taking the time to learn and bring awareness to this disease!
While I breathe, I hope.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.