Jessica Waggoner

Hi, I am Jaryn and currently 7 years old. I was 10 days old when my parents were told that I likely had Cystic Fibrosis (CF).  Since birth, I have experienced pancreatic insufficiency, failure to thrive, major constipation, and have harsher/longer common colds.  To date, have been fairly healthy, but do have additions to my daily life that those without CF do not experience, including:

• Taking enzymes for pancreatic insufficiency to assist my body in absorbing nutrition,
• A gastrostomy tube placed at 13mo to receive daily & nightly feeds for supplemental nutrition,
• Taking Miralax to reduce/prevent the major constipation,
• Adding salt to my daily diet to replace the additional salt lost,
• Doing daily Chest Physical Therapy (CPT) to prevent buildup in my lungs (luckily I now have a Vest machine so my dad and mom no longer do it manually),   and
• Daily regimen of medications.  

Real progress has been made for those who have CF, but there is still no cure for this devastating terminal disease. The life expectancy of someone born with CF has doubled in the last 30 years, but many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure! I will not leave anyone behind!  

Please join and or support!

To join me in the walk, just click on the "Join Jaryn’s Team" button. From there, you can make a donation and start fundraising. By joining my Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF. 

To make a donation, just click on the “Donate to Jaryn” button.  We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Please help us reach our fundraising goal!

Together, we can make CF stand for Cure Found.