Milo Cooper Hamilton, 7 years old, was diagnosed with Cystic Fibrosis prenatally when Kelly was 21 weeks pregnant. It's a genetic condition that currently has no cure, but with help from YOU (Milo's family and friends) new medications and treatments are always being funded. Milo is often participating in research and drug trials because we are always looking to help in finding ways to cure this disease! YOU can help get us closer with a donation of $5, $10, $50 - EVERY dollar counts.
When Milo was born the number of Hoosiers with Cystic Fibrosis was 714, and that number isn't going down. 1 in 10 people are carriers of the gene!
Facts about Milo and his CF Journey:
1. Milo has pancreatic insufficiency so he takes enzymes with every meal. Right now he takes about 30 pills EVERY day.
2. He does "shakies" twice a day for 30 minutes each time. It's an inflated vest that compresses his back and chest and literally shakes his mucus loose. You should hear him try to talk during his treatments :)
3. During his shakies he takes nebulized medication (2 in the morning, and 3 in the evening). ALWAYS. On vacations. If he's already asleep. In the middle of play time. EVERY DAY, TWICE A DAY!
4. Milo was failure to thrive for a long time. He has a feeding tube to help supplement feeding and its a great way to take meds when he's sick. Finally he is on the right track and doctor's are thrilled with his weight gain!
5. Before his first birthday Milo was admitted to the hospital for approximately 70 nights total. It was a rough first year! But thanks to new medications, like Orkambi and Trikafta, he's doing well. And guess what, Orkambi was funded by people who donated to the CFF!!!!!!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.