Our Great Strides Story
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads,
sisters, brothers, daughters, sons, friends and co-workers. Our 3 year old daughter, Cora, is one
of them. We walk for her and for the many others who struggle with this disease. We hope
you will support us in our efforts.
Cora was born on July 22, 2011 and was diagnosed via the newborn screening at the age of six
days old. Cora started breathing treatments immediately to prevent respiratory problems. We also do respiratory therapy daily which includes a
vest for chest percussion therapy. This may sound like a lot of work, but words can't express how thankful we are that Cora has remained healthy. There are new drugs in the pipeline that help many patients with CF. Unfortunately, Cora has not been able to take them. She was hospitalized this summer for liver injury likely linked to the medication. So, our fight continues for her.
We know that raising CF awareness and committing to fundraising efforts is the best way to ensure a bright future for our beautiful daughter, and for so many others. There are drugs presently available that have been a real game changer for some CF patients.
Cora has been such a joy to our lives. She loves going to school with her friends, playing soccer, basketball, softball and hanging out with her big sister, Emma. We are hopeful that she will enjoy a long, healthy life doing the things she loves. That's why we will continue to fight for her and for everyone living with CF. Thank you from the bottom of our hearts for your generosity and support.
What can you do to help?
1) Join our walk team and the walk at Victory Field on April 28. Just click the "Join My Team" button on the right.
2) If you are unable to take part in the walk, we would be honored if you would sponsor Cora's
Crew with a contribution of your choice. Any amount will help us reach our goal. To make a
secure, online donation, just click the "Donate to Me" at the top of this page.If you'd prefer, you
may send checks, payable to "Cystic Fibrosis Foundation" to my office address: Amy Henry State Farm 7319 E 116th Street Fishers, IN 46038.
Any contribution you make is 100% tax deductible and the CF Foundation will use almost 90
cents of every dollar raised to find and fund A CURE.
If you are donating to Ed McCabe's Memorial, we appreciate your love and support. He was a strong supporter of Cora's Crew.
Thank you so much.
Amy, Jake, Emma and Cora
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.