In 2020, the rest of the world experienced what those with CF have known to be their reality for their entire lives. Social distancing, mask wearing, hand sanitizing, staying home during sick season - those are all the norm for people with CF and will continue to be until there's a cure.
Much progress has been made over the years to develop medicines and therapies that greatly improve the quality - and quantity - of life for many of those with CF. Still, we won't stop fundraising until there is is cure.
We are asking for your help, in support of our amazing CF Fighters Bailey and Chase. <3
Bailey was diagnosed with CF in 2009 at about 6 weeks old, as a result of an abnormal newborn screening test. What we had envisioned as life with our new baby quickly changed. We learned how to give an infant pills and breathing/chest physiotherapy treatments, and attended more doctors appointments than we could count. When Chase was born in 2011, his bloodwork 10 days later showed that he also had CF. All of the medicines, appointments, treatments, precautions were now x2. Both children have had multiple hospitalizations in their short lives, but thanks to advances in therapies those stays are becoming fewer and farther between.
Today, Bailey and Chase are both very active kids who enjoy playing sports to stay healthy. But still, on top of the normal school work, chores, sports practices, homework and other extra curricular activities they still spend over an hour each day tending to their health. Our dream is that one day those treatments and medicines are no longer required. We appreciate your donations and support to help us get closer to that goal!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.