My Great Strides Story
I’m Emily, a 29 year old registered nurse living with Cystic fibrosis. I was diagnosed after my second birthday because my mom wouldn’t give up on me, and so the journey of hospital stays, antibiotics, CPT, endless breathing treatments, pills and so much more began. Despite my health worsening I’m still able to work full time doing what I love as a medical surgical nurse. Even as little as ten years ago i never thought that would be possible, and it’s because of the advancements made possible through donations to this organization. Please help support me and my fellow CFers with our efforts to live longer stronger days.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
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