Like so many parents in the CF community, my daughter’s diagnosis came completely out of the blue. An aspect of Cystic Fibrosis that still astounds me is how silently it is carried through generations of family members, completely undetected. My daughter was 3 weeks old when we got the call from her doctor suggesting she may have Cystic Fibrosis, less than a week later we got the official diagnosis.
It has been 6 months since then. Her mutations are Df508/2184insA and has thus far been mostly healthy. I feel very fortunate that despite my daughter’s CF she is thriving. I know that for many CF parents that is not the case. I have seen so many horror stories and watch as families struggle with their child’s health from day to day. It is so important that people become more aware of this disease, what it is, what it does, and how possible it is that they are a carrier without even knowing.
I am doing my best to stay positive and only wish for my daughter to live a long happy and healthy life, even if she has to work a little harder at it. I am excited to start participating in the Great Strides events. I hope to spread knowledge and awareness of Cystic Fibrosis with the help of my team. I will do whatever I can to help the CFF in hopes that one day my daughter, and way too many like her, get the cure they deserve!
Please support my team!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!