Hi!! We’ve had another pretty great year. In September, we adopted an all black dog from the KC pet project. He is a 7 years old German Shepherd Mix named Hayes. He’s a very sweet boy. He has great manners and fits in with our busy family.
Hayes enjoys camping with us and our camper continues to take us on many adventures. We recently went to Hot Springs National Park. Bathhouse Row was very cool with beautiful architecture and hiking trails. Hayes was such a good boy that he got a certificate and bandana for following the rules of the park and was named a Bark Ranger of Hot Springs National Park.
Jacob is finishing up his Freshman year at Rockhurst high school. He’s had a really great year. He sang in the school choir and his other elective this year in school was Mandarin
Chinese. He is loving it. He continues to be active in Boy Scouts and has only 2 merit badges left as well as his Eagle project to complete before he earns his Eagle scout. He will
attend Scout camp again this summer with David and Isaac. We are very proud of him. He continues to take care of his kitty Vader.
David is finishing up his last year of middle school and next year will be attending Rockhurst high school. He is also singing in the school choir and will be running the sound system again for the middle school musical- Shrek Jr. He switched over from the baritone to the trombone and got to attend and play with Grandpa Phil for Trombone Christmas last Christmas at Union Station. He is still active in Robotics club and hopes to continue Robotics when he starts at Rockhurst. He is still active in Boy Scouts and will attend Bartle Scout camp again this summer with Jacob and Isaac. David has participated in 3 Mathletics competitions and recently earned 2nd place! David is still only doing 1 treatment a day and is highly enjoying that. He continues to be in charge of his own health and is doing a great
job remembering his medications and communicating well if he needs something or if something is off for him. He will be going to Washington DC at the end of April with his 8th
grade class and he’s very excited about it.
The triplets turned 11! I can hardly believe it! They are all doing well! They are in 3 separate classes at school again this year.
Rachel is still doing all the sports. She and Leah joined a club soccer team and started out on the same team and now are on separate teams but Leah guest plays all games on Rachel’s team on an “as needed” basis. It’s fun to watch
them play! Rachel is active in scouts and is working hard. She will be going to scout camp
at Bartle for the first time this summer with Leah and Dad.
Isaac is active in Mathletics and enjoys challenging himself. He is also active in boy scouts and looking forward to going to scout camp at Bartle for the first time this summer. He has been participating in film club at school where he’s learning to make movies, animation, and history of film. It’s been fun for sure.
Leah is awesome! She is loving soccer and has scored a few goals for her team. She has been in good health and has been starting to take charge. She still needs several reminders but she’s making improvements in the right direction. She is down to doing 1 treatment a
day and is highly enjoying that. She is also participating in film club at school with Isaac and is learning a lot. Leah has made her first quilt. With the help of my mom, her and my mom made a beautiful quilt. Great job Leah. She is taking charge of her ADHD and speaks up for
herself and telling someone when she is struggling. She finished her clinical trial and was such a rockstar. She is active in scouts and is working hard. She will be going to scout camp at Bartle for the first time this summer with Rachel and Dad. Something Leah and the
rest of the family are excited about is that Leah got her Make a Wish trip approved. We are headed to HAWAII!! We can’t wait. She’s excited to snorkel, swim with the dolphins, attend a luau, etc.
Matt and I have been active in volunteering. We are still volunteering for various CF events
as well as Make a Wish events. As always, we fight CF by teaming up with the CF
Foundation to raise awareness and money for a cure. If you would like to donate to our
team, Carpenter Conquerors, please click the link below. If you would like to become more
involved with the CF foundation, we encourage you to join us at this year's Great Strides
event!!!
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.