March 18, 2024
Last week I was in Washington DC to continue my mission of funding research to find a cure for cystic fibrosis. I was part of over 300 people to advocate for loved ones with CF. My grandchildren, Ashton and Lola who are brother and sister, fight this fatal disease. We've come so far but there is still no cure. Advocacy is extremely important but so are the funds we need to find a cure for CF. Please consider a donation of any size for Team Ashton and Lola.
To update you a bit, Ashton will graduate college and Lola graduates high school. Both events this June. I will be there! I am doing much better than a couple years ago so my energy can be focused on this mission. I cannot stop until there is a cure for cystic fibrosis.
There are approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We've come so far, but there's still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.