Marcia Freeman

At age 50 living with Cystic Fibrosis along with receiving two double-lung transplants, I have seen a lot of changes in the medications and treatments of this disease. In 2019, a gene modifier medication was approved to treat the defect in cells of those living with CF to allow them to function more normally. This was a HUGE deal and is changing thousands of lives for those who are taking it. But it's still not a cure, and this drug is not approved for use by all CF patients, and is not effective for a small percentage of people with CF. For me personally, as a double-lung transplant recipient, it is not officially approved for my use. Doctors and experts are watching to see if it will be safe for us post-transplant patients in the future to help with the other organs in our bodies deal with CF. 

So, bottom line is that despite the impact Great Strides fundraising has made in the last few years with life-altering treatments, we still have a way to go. Please help us stride our way to a cure and until all of with CF are helped.  

Please consider donating to help us fight the fight!

Marcia

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There are approximately 30,000 Americans living with cystic fibrosis. We are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. I walk at Great Strides for them and hope you will support me in my efforts.

Real progress has been for those of us who have CF, but there is still no cure for this devastating disease and too many lives are cut far too short. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Please consider making a donation to my Great Strides fundraising campaign today!

Please support me!

Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.