Hello Team Bethany sponsors!
As most of you know our daughter, Bethany Tullis, has Cystic Fibrosis (CF) thus our family has a deep desire and goal to raise awareness, raise money and raise support for researchers as they work to find better therapies and ultimately a cure for this chronic and progressive disease. The Cystic Fibrosis Foundation (CFF) tirelessly pursues efforts to cure Cystic Fibrosis through a model of efficiency, innovation and a results-driven approach.
Thanks to the support and donations by many of you and others engaged in this battle, “Great Strides” have been made towards our goal of better treatments and a cure. 2018 was a strong year for the CF community with new drugs and treatment therapies that look very promising and there are great expectations for late 2019 that should be game changing as well. Just a few years ago, the median age of survival for CF patients was 37 years of age. Now it is just over 40. This is encouraging news and is testimony that progress is being made but we can’t slow down – we must keep moving this number higher!
The good and the bad thing about many patients with CF is that some don’t show signs of having a “chronic” disease. When in a crowd or group of people, sometimes it’s very difficult to tell who has CF and who doesn’t but it doesn’t change the fact…it’s there and, they do. Bethany is one of these CF patients.
In honor of Bethany and others who have CF, we are asking for your help by donating to the CFF in the upcoming Great Strides Walk. The Great Strides Walk will be held this year in Wichita at Exploration Place on Saturday May 4th with a check-in time of 9:00AM. We would love to have you join us! If you plan on walking with us, please arrive no later than 9:00 to join us in our “Team Bethany” photo. Let us know if you are walking and we’ll keep an eye out for you and remember to wear your Team Bethany shirt from last year. If you dont have one, I'll have some with me at the walk for $15 with 100% going to the CFF. If you can't make it to the walk you can donate online or write a check to the Cystic Firbrosis Foundation and get it to me or mail it to: Team Bethany C/O Dean Griffis 240 S Forestview Court, Wichita, KS 67235.
Join our team and help add tomorrows!
Dean and Sharon Griffis
Breathe Easy Bug!