In 2020, the rest of the world experienced what those with CF have known to be their reality for their entire lives. Social distancing, mask wearing, hand sanitizing, staying home during sick season - those are all the norm for people with CF and will continue to be until there's a cure.
Much progress has been made over the years to develop medicines and therapies that greatly improve the quality - and quantity - of life for many of those with CF. Still, we won't stop fundraising until there is is cure.
We are asking for your help, in support of our amazing CF Fighters Bailey and Chase. <3
Bailey was diagnosed with CF in 2009 at about 6 weeks old, as a result of an abnormal newborn screening test. What we had envisioned as life with our new baby quickly changed. We learned how to give an infant pills and breathing/chest physiotherapy treatments, and attended more doctors appointments than we could count. When Chase was born in 2011, his bloodwork 10 days later showed that he also had CF. All of the medicines, appointments, treatments, precautions were now x2. Both children have had multiple hospitalizations in their short lives, but thanks to advances in therapies those stays are becoming fewer and farther between.
Today, Bailey and Chase are both very active kids who enjoy playing sports to stay healthy. But still, on top of the normal school work, chores, sports practices, homework and other extra curricular activities they still spend over an hour each day tending to their health. Our dream is that one day those treatments and medicines are no longer required. We appreciate your donations and support to help us get closer to that goal!