Please join us in our walk and fundraising to help sweet, sweet Harlen have the best chance at a long healthy life! This little guy has already proven that he is a strong, brave, fighter and we can fight beside him and his awesome family.
This is 9. Harlen has been on his miracle drug, Trikafta, for a year and a half, and the results are astounding. He is strong, healthy, and thriving. He is very lucky to both qualify for these drugs and to be having such a positive reaction to them. He is our miracle.
About 10% of the CF population does not yet have a medication (a modulator, they are called) available to them. We continue to fight and we continue to walk and raise money to help them. Trikafta and the other modulators are close to a cure, but they aren't for everyone and they aren't a cure.
Donate if you can to help us give Harlen more tomorrows and make "CF" stand for "Cure Found!" We are so close!!!!
We love you all! The walk is Sunday, June 4th at Adelphi University. Can't wait to see you there!
All our love,
Lona, Jason and Harlen
Thanks, Much Love and Be Brave!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.