The 2023 Great Strides Walk to find a cure for Cystic Fibrosis (CF) is Sunday, May 21, 2023, 9:00am (walk starts at 10a!) at the Holtsville Zoo and Ecology Center!
This will be Team Victoria's 15th year participating in Great Strides. Victoria had a great year maintaining her health and positive attitude, enjoying time with family, friends, and school. In December 2019, Victoria started taking the medication Trikafta - and the results have been amazing. She gained weight, no longer coughs unless she has a cold, and feels good overall. And while Victoria is continuing to be challenged with CFRD (Cystic Fibrosis Related Diabetes) for a few years now - she rises to meet this challenge, and works hard to maintain her blood sugars (while enjoying life) - going from a 13.9 A1c in 2019 to her current 5.9 A1c in 2023.
These new drug therapies, research, and treatments in development are truly remarkable, and all of this progress is happening due to your generous donations and support. So thank you!! But there are still members of the CF community who are not able to take modulators like Trikafta, so we need to make sure they are not left behind as we continue our mission to make CF stand for "Cure Found."
With gratitude, Michele, John, and Victoria
There are approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them and for our daughter Victoria - and hope you will support us by making a donation. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.