On Sunday, June 5th my family and I will be participating in the Cystic Fibrosis Great Strides Walk in Garden City at Adelphi University.
Cystic Fibrosis is a rare, genetic, life-shortening disease that makes it difficult to breathe.
As some of you know, I walk in honor AND memory of my brother, Shawn Alan Griffenkranz. He lost the battle to CF at the young age of 10, but he was a fighter. His strength, the will to live, and the ability to annoy his little brother and baby sister were nothing short of admirable.
I was only 4 when he passed, I cannot remember his voice, and I only have still images in my head of the times we spent together. I have cherished those moments and replayed them over and over in my head countless times. I refuse to the let them fade away. I refuse to let this disease take one more thing from me. I need to continue the fight for my brother and everyone else who has lost their battle or is battling every day with cystic fibrosis.
The last time we were able to do this special walk was in 2019. Unfortunately, due to COVID, the walk was not possible for the past few years.
Will you please support my team, Shawnee's Angels, by donating to help us get one step closer to a cure?
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.